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  • For millions of people, rare diseases are more than just statistics—they are daily challenges, unanswered questions, and battles ...
  • To leave no one behind, over 170 organisations championed by the European Union and members states are working hand in ...
  • The 2nd International Conference on Clinical
  • The #Together4RD Toolkit is a new strategic resource to support effective, transparent, and impactful ERN-industry collaborations ...
  • ERDERA

In-Depth Information on The Erdera Diagnostic Research Workstream An Overview

The session introduces the European Rare Diseases Delivered by Dr. Ana Topf, (Newcastle University, UK) on Thursday, 5 February 2026. 30 million people in Europe live with a rare disease. Yet most still lack a Launched in September 2024,

European Reference Networks (ERNs) are at the heart of rare disease care and

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